From the busy month of June, there are two stories I'd like to share today.
First, the encouraging recovery of Jacques Matellus, who suffered a cervical spinal cord injury in 2019. A year later, he is walking again, expecting far more progress ahead!
Second, the recent injury of Officer Shay Mikalonis. Officer Mikalonis was shot in the head June 1st and has been diagnosed as paralyzed from the neck down. He is on a ventilator and soon to begin rehabilitation. His injury is extremely serious; please remember him and his family.
Please keep both of these men and their families in your thoughts and prayers in the days ahead.
Tuesday, June 30, 2020
Friday, June 19, 2020
Sensation and SCI
Sensation after spinal cord injury is complex. Every SCI is different, and in many ways, feeling and sensation are a testimony to the amazing intricacy of the central nervous system.
What do you physically feel after SCI? It truly varies from person to person. Some people have no sensation and no movement or muscle function, others have complete sensation and no movement, and yet others have no sensation and full movement or at least some ability to stand or walk. Personally, I have a mix of sensation and function. It's relatively little of what anyone else might call "normal" sensation, and more of what you might call "deep" sensation: noticing pain, the discomfort of a big wrinkle in a pant leg, or pressure on a bony part of the knee, for instance.
An interesting aspect of sensation is how much you notice it when it's gone. I have a much harder time walking without seeing my feet. This is because the body subconsciously relies so heavily on feeling. (Proprioception is the term for your body's awareness of where it is and how it is positioned.) But if you have ever heard people say that they knew what had happened as soon as they suffered a traumatic spinal cord injury, it's true that you can tell the difference before and after injury, and it can be in an instant.
Questions or suggestions? Please comment below!
What do you physically feel after SCI? It truly varies from person to person. Some people have no sensation and no movement or muscle function, others have complete sensation and no movement, and yet others have no sensation and full movement or at least some ability to stand or walk. Personally, I have a mix of sensation and function. It's relatively little of what anyone else might call "normal" sensation, and more of what you might call "deep" sensation: noticing pain, the discomfort of a big wrinkle in a pant leg, or pressure on a bony part of the knee, for instance.
An interesting aspect of sensation is how much you notice it when it's gone. I have a much harder time walking without seeing my feet. This is because the body subconsciously relies so heavily on feeling. (Proprioception is the term for your body's awareness of where it is and how it is positioned.) But if you have ever heard people say that they knew what had happened as soon as they suffered a traumatic spinal cord injury, it's true that you can tell the difference before and after injury, and it can be in an instant.
Questions or suggestions? Please comment below!
Saturday, June 13, 2020
Video: About KAFOs
If you'd like to know more about what knee-ankle-foot orthotics are, how they work, and how they are worn, this video is for you. More to come about both KAFOs and AFOs. Questions or suggestions? Please comment below!
Monday, June 1, 2020
Video Update (May 2020)
My video update today shows my progress using AFOs (ankle-foot orthotics). In years of working with orthotics, I've found the trickiest transition to be from KAFOs (long leg braces) to AFOs (braces below the knee). As always, every spinal cord injury is different, so not everyone would find this to be the hardest change to make. For me, regaining knee function has proven a challenge. Plus, the last time I was closest to making the switch occurred right before the discovery that my leg was what the doctors called "impressively" broken. The broken leg had nothing to do with using KAFOs or AFOs. It had everything to do with osteoporosis, a side effect of spinal cord injuries. But whenever AFOs come up, I worry that something else might happen — and that others, thinking it had to do with the orthotics, will miss out on the benefits of KAFOs/ AFOs!
In future posts, I'll be saying more about both KAFOs/ AFOs, including what they are and how to use them on a daily basis. I'm also going to talk a little bit about osteoporosis. These are some of my most requested topics. If you have questions or comments about what would be helpful, or if there's something that you're curious about, please contact me or leave a comment below.
In future posts, I'll be saying more about both KAFOs/ AFOs, including what they are and how to use them on a daily basis. I'm also going to talk a little bit about osteoporosis. These are some of my most requested topics. If you have questions or comments about what would be helpful, or if there's something that you're curious about, please contact me or leave a comment below.
Tuesday, May 12, 2020
Carrying the Rosetta Stone . . . and Other Exercise-at-Home Adventures
Health and fitness are always huge topics, but with the COVID-19 situation, a lot of people are asking questions about staying fit while staying put. For some with disabilities and injuries, being out of physical therapy is not only mentally trying, but also physically difficult. It can really set you back. Today, I thought it might be helpful to talk about ideas for therapy at home. Please remember that none of this information is intended to serve as medical advice. It's based on personal experience and/ or research, and has nothing to do with a professional capacity or recommendation. (I'm a doctor, but not that kind of doctor; please, consult with your medical professional and/ or physical therapist for their suggestions and ideas.)
Today's post touches on information for exercising both the upper and lower parts of the body, especially fingers, hands, and toes. My past videos and posts have primarily focused on exercises for the lower body, and mostly for larger muscle groups. This is because my spinal cord injury occurred at the thoracic level. While it was catastrophic, there was no cervical spinal cord trauma or lasting neurological damage to my arms, hands, or fingers. It was a close call. In the accident that caused the SCI, I sustained very serious upper-body injuries, including a broken neck, broken ribs, and collapsed lungs. After being in Intensive Care and Critical Care, I had to relearn how to breathe and move again. Again, thankfully, the nervous system was intact to at least T10 despite many broken bones in the cervical area, so for me, respiratory therapy mainly involved using a spirometer (a topic for another post). Physical and occupational therapy had to wait. It never occurred to me how much muscle mass had vanished from my arms and hands until about the first day of being allowed to eat again. Wow, was that an eye-opener. I could hardly lift a small half-glass of water. Before then, I wouldn't have begun to be in any shape to think about maintaining muscle tone.
That was where Occupational Therapy came in. The routine with OT involved everything from stretching Therabands and lifting one-pound weights to measuring pinch strength of the thumb and index finger. By the time I left in-patient therapy, I could lift two-pound weights. Still, when I returned to school in August 2014 and was handed an iPad, that device alone felt impossibly heavy. My backpack was a supported pack with lumbar straps, and all I could tolerate in it was that iPad. Glasses of water were easier to lift than they had been, but books? I could barely lift a paperback, much less a typical textbook. Daily living became the best therapy. Without help for tasks during the day, I learned how to do small dishes, carry lightweight bags with a walker, and sit while transferring books between locations. By 2015, I was picking up huge books from the library and carrying them against a walker. (The triumph came on the day I hauled a Demotic Egyptian reference book back home and unfolded its life-size replica of the Rosetta Stone. I call that "The Day I carried the Rosetta Stone.")
Fortunately, with the exercises here, you don't have to be able to lift the Rosetta Stone (which is great, because even if you had access to it, the real thing weighs over 1600 pounds). And I've tried to do some of the "heavy lifting" for you with these links by giving some extra information.
Questions or suggestions? Please comment below! You can also learn more by subscribing to my YouTube channel.
FlintRehab: Clever ideas for building hand strength after spinal cord injury: flipping light switches, sorting small items like candy, popping bubble wrap, turning the pages of a book, etc. Using a yo-yo or scissors makes this list, and so do painting and sculpting.
CareFirstRehab: A resource for stretching and strengthening your hands after injuries, this page has ideas that don't require many props.
VeryWellFit: With everyday items like hand towels, rubber bands, and Silly Putty, you can find some pretty useful exercises here.
BeachBodyOnDemand: This link includes photos of foot, hand, and arm exercises, plus lower-body workout suggestions.
Athletico: A lot of interesting ideas here. I haven't tried working with laundry detergent bottles, but in a pinch, being caught at home under the coronavirus conditions . . .
WholeBodyHealthPT: Including a nice list of items with approximate weight values (e.g., 5 pounds = 1 bag of rice).
Theraband Hand Exerciser: A product and not really an exercise website, this link includes a guide to hand exercises using the Theraband hand exerciser. Take a look at the PDF image for suggestions like pinching, compressing, and finger-walking. Note: I haven't used this product.
Today's post touches on information for exercising both the upper and lower parts of the body, especially fingers, hands, and toes. My past videos and posts have primarily focused on exercises for the lower body, and mostly for larger muscle groups. This is because my spinal cord injury occurred at the thoracic level. While it was catastrophic, there was no cervical spinal cord trauma or lasting neurological damage to my arms, hands, or fingers. It was a close call. In the accident that caused the SCI, I sustained very serious upper-body injuries, including a broken neck, broken ribs, and collapsed lungs. After being in Intensive Care and Critical Care, I had to relearn how to breathe and move again. Again, thankfully, the nervous system was intact to at least T10 despite many broken bones in the cervical area, so for me, respiratory therapy mainly involved using a spirometer (a topic for another post). Physical and occupational therapy had to wait. It never occurred to me how much muscle mass had vanished from my arms and hands until about the first day of being allowed to eat again. Wow, was that an eye-opener. I could hardly lift a small half-glass of water. Before then, I wouldn't have begun to be in any shape to think about maintaining muscle tone.
That was where Occupational Therapy came in. The routine with OT involved everything from stretching Therabands and lifting one-pound weights to measuring pinch strength of the thumb and index finger. By the time I left in-patient therapy, I could lift two-pound weights. Still, when I returned to school in August 2014 and was handed an iPad, that device alone felt impossibly heavy. My backpack was a supported pack with lumbar straps, and all I could tolerate in it was that iPad. Glasses of water were easier to lift than they had been, but books? I could barely lift a paperback, much less a typical textbook. Daily living became the best therapy. Without help for tasks during the day, I learned how to do small dishes, carry lightweight bags with a walker, and sit while transferring books between locations. By 2015, I was picking up huge books from the library and carrying them against a walker. (The triumph came on the day I hauled a Demotic Egyptian reference book back home and unfolded its life-size replica of the Rosetta Stone. I call that "The Day I carried the Rosetta Stone.")
Fortunately, with the exercises here, you don't have to be able to lift the Rosetta Stone (which is great, because even if you had access to it, the real thing weighs over 1600 pounds). And I've tried to do some of the "heavy lifting" for you with these links by giving some extra information.
Questions or suggestions? Please comment below! You can also learn more by subscribing to my YouTube channel.
FlintRehab: Clever ideas for building hand strength after spinal cord injury: flipping light switches, sorting small items like candy, popping bubble wrap, turning the pages of a book, etc. Using a yo-yo or scissors makes this list, and so do painting and sculpting.
CareFirstRehab: A resource for stretching and strengthening your hands after injuries, this page has ideas that don't require many props.
VeryWellFit: With everyday items like hand towels, rubber bands, and Silly Putty, you can find some pretty useful exercises here.
BeachBodyOnDemand: This link includes photos of foot, hand, and arm exercises, plus lower-body workout suggestions.
Athletico: A lot of interesting ideas here. I haven't tried working with laundry detergent bottles, but in a pinch, being caught at home under the coronavirus conditions . . .
WholeBodyHealthPT: Including a nice list of items with approximate weight values (e.g., 5 pounds = 1 bag of rice).
Theraband Hand Exerciser: A product and not really an exercise website, this link includes a guide to hand exercises using the Theraband hand exerciser. Take a look at the PDF image for suggestions like pinching, compressing, and finger-walking. Note: I haven't used this product.
Wednesday, April 22, 2020
Friday, April 3, 2020
Awesome Gang Feature
Ifscapes: Empires and Androids can now be viewed on Awesome Gang's book promotions page! Available on Amazon, the ebook is marked down to 0.99 through noon (PDT) on April 4 and then will be available for 1.99 until 11:59 p.m. (PDT) on April 7. Thanks to Awesome Gang for the feature! Click here to follow the link.
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